Mrs Crowe said her daughter qualifies for respite care, meaning that the family are able to apply for help while they take a break from caring duties – but that without a portable bed Taylor was at risk of getting injured when outside of their home.

“It really would be something to be able to have a break,” Emma said, adding that she and her husband, Peter, wanted to be able to spend time with their two sons, aged 11 and 16.

“We have had all these years we haven’t been able to do anything with our other kids and enjoy our family time,” she said.

Mrs Crowe said she hoped that providing Taylor with respite care – and a bed that supports her needs – would allow the other family members to spend time together.

“If we wanted to go to Alton Towers with the boys, Taylor would be cared for,” she said.

Mrs Crowe added that she did not want to “seem like I’m complaining”, but said the situation is often challenging, particularly finding time to spend with the couple’s two sons.